Tag Archives: caregiver

Getting the Best out of Yourself

Try not to become a man of success but a man of value.
Albert Einstein

The quote above to me is so poignant. I truly believe though that it must become second nature to be a man or woman of value and you need to instill that from within.

I still remember the day that I almost lost my dad back in July of 1996. He suffered a heart attack and his heart stopped beating, but the doorman at the Fairmont Hotel broke into his car and started his heart beating. My father remained in a coma for two weeks (yes during the Atlanta Olympic Games) before coming out of it. My father suffered some brain damage (loss of oxygen to the brain) which caused him the loss of short term memory and often caused him to lose orientation of what year it was. It was almost like Alzheimers except some new memories were created and he only forgot the things that didn’t matter to him.

My mother refused to put him in a home and acted as his primary caregiver for the next 10 years. Although he was never the same person again, I am so happy that his near death kick-started me into having a family and grandchildren that he got to meet and know. He continued to to teach me new lessons even then.

One of those was that my dad lost his ability filter his thoughts. He did not hold back his feelings about things, people or situations. Just imagine if you just started telling everyone what you thought of them. Well, my dad was pure. He smiled at people he didn’t recognize and even at people I thought he didn’t care for. Later I would ask who they were and he said, “I thought you knew”. When my mom would drag him to flower shows I’d ask him how it was. He’d say it was really boring but my mom seemed to enjoy it. He never had a bad thing to say. He was just naturally a positive and gentle person. His illness was a truth serum that some couldn’t handle. We saw others with the same problem who became vicious towards family and friends. An old co-worker of his pulled me aside at his Life Celebration and said, “I knew your dad didn’t recognize me, but that twinkle in his eye and his smile were still the same. He made even strangers feel special.”

It really taught me to seek the kindness in others and to see things first with an eye towards the positive. We are often taught to be protective and cautious and I realize that can really hide the opportunities that you might be offered. There are never enough favors that you can give or thank yous that you can say. My dad was definitely a man of value. A man who valued the relationships and loves in his life so much that it was instinctive.

After a while it should just come naturally. I often hear about how people say how hard it must have been to take care of my wife during those days after surgery and those long weeks of waiting. I think my love for my wife made me her natural caregiver. I knew that it was just the thing to do. Put my fears and hopes aside to be all that I could for my wife. I think having been a caregiver for my dad those years, watching my mother care for her husband (yes they argued, but they loved each other), and then caring for my mother during her cancer gave me a little headstart in caregiving, but not much. The most inspiration though came from the relationship, the strong relationship, I have with my wife. They say your true colors come out when you have times of crisis. I think I showed myself my own true colors and I’m proud of what I saw.

I mention this because in the book I read, My Life with Laura, my friend Chad showed his true colors as well. Although he had only known his wife a few short years, his dedication showed the love of a lifetime. I have read stories about those who don’t get support from their husbands or family members during these times and I think that might just show a crack in the armour that had been there already. My wife and I have a few cracks especially when it comes to communication. And it definitely showed a bit when we had some intense moments, but our love was and is strong.

I know I’ve written about this before in bits and pieces, but I have to repeat these mantras occasionally. I listened to our new President’s speech about strength and fortitude and the need to test ourselves in the worst of times. Now is when I really am testing myself. I already see these next several months are going to be tough on me for different reasons than health.

In the end I just need to make sure that I find myself as a person of value and to instill that upon my life on a daily basis.

Breast Cancer Caregiver Guide for Spouses

The source of all life and knowledge is in man and woman, and the source of all living is in the interchange and the meeting and mingling of these two: man-life and woman-life, man-knowledge and woman-knowledge, man-being and woman-being. – D. H. Lawrence (1885-1930) English writer

I hinted at this yesterday but it has been beating on my mind all day.  When I retraced my steps over the last several months I looked back and wonder how I made it with my senses still intact. 

Let me first say that what the men go through when their wives have breast cancer is nothing compared to what their wives or mothers or daughters will experience, but I believe the life partners  (I’m mostly talking about husbands) are a critical part of the management when cancer enters a woman’s life.  There is no doubt that men get a bad rap about how we react when our loved one tells us that she has cancer in a part of her body that is such an intimate part of our physical relationship.  But aside from where it is located, we just aren’t ready for cancer period.   Even if we men were better prepared, all it takes is one bad apple to spoil the cart and our reputation as a group would be back out curbside.

I’m not saying we men are the fairer sex.  Heck no.  We definitely have a few (make that many) flaws.  That’s why we love women so much!

What I am saying is that while my wife came home with packets of information and videos, there was nothing for me.  Not a word of guidance.  I spent hours taking notes at each doctors visit, I ended up having to do lots of research and looking to other women and their spouses for what to do and more importanly what not to do.  Its harder than you think.  I don’t even think that my wife’s surgeon shook my hand the first time we met.  Mind you she is a wonderful lady and we have a great relationship, but I don’t know if the doctors know what to do when the spouse shows up.  Rightly so, they spend all the time talking to our wives.  They need tools to give us. I don’t need much.  All I needed was a one pager.  Something that said, the best thing you could do right now is hold your wife’s hand.

Well I gathered a lot of information.  Unfortunately I found some good resources after the fact, but I saved them.  I have links to most of them in the Cancer Resource Links in the right column of this blog.  So if you’ve just found this, take a look at these links specifcally for men.  Some come from friends I’ve met and others from research I’ve done:

Good Websites:

Men Against Breast Cancer

Breast Cancer for Husbands

Breast Cancer Husband

Some Real Personal Blogs:

The Moutray Chronicles

The Price of Love

Articles Every Husband or Father Should Read:

Love Her Tender

A Guide for Clueless Guys

A Supremely Kind Spouse

I hope you all find these useful in your journeys wherever you may be.

My Life With Laura Blog Book Tour & FightPink.org

If you’re going through hell, keep going.  ~Winston Churchill

Before I begin my post for today I want to thank Stacy from FightPink.org.  Stacy was kind enough to post my original three blog posts on her site in the co-survivor section of her website.  I hadn’t read them in a while and it seems like years ago since I wrote them, but I’m glad she found them and felt they were worthy of posting.  I hope someone finds them useful.

I also want to make sure anyone who reads this post to come back here on January 19th, Martin Luther King Day.  I will be hosting an interview on the Blog Tour for Chad Moutray’s book, My Life with Laura – A Love Story.  It is a love story which ends sadly when Chad and his wife lose their battle with breast cancer.  Chad is having a blog tour about his book and several of us have read it.  I encourage you to follow the different dates on his two week tour of many different blogs.  Here is a link to his schedule:

Today flew by for me, but I can say it was a full day of thinking, laughing, and eight glasses of water to fight my voice which is pretty weak right now.  I received an email that made me laugh.  The person asked me why I was posting “Celebrity Sightings” on my Cancer Blog!  Yes, my life is moving in a different direction.  Cancer still stares us in the face and will occasionally be on topic for the next several years as my wife faces her post-cancer trials and therapy.

In fact as I worked up some interview questions for Chad, I was thinking about the predicament that many men are put in when their wives discover they have breast cancer.  We have to be strong, silent, empathetic, and unselfish all at once.  Some of us have not even had practice at one of those things.  That does not even begin to talk about the tasks that we need to serve as cook, provider, chief information officer, Florence Nightengale, joe the plumber and many other things I can’t remember.  Let’s face it, men just don’t have a good rap as caregivers.  When I was faced with those many hours sitting in the waiting room, I hated being the only husband sitting in the room with a young wife.  Where were the other husbands?  Face it, the waiting room of a breast cancer clinic was no place for a man.  All those glamour and cooking magazines.  I was left to read last year’s ESPN Spring Training Preview where they picked the Detroit Tigers to win it all (boy were they wrong).  I started bringing  in more current magazines on business, sports, photography, and travel.  By the time my father-in-law made it to his first and only visit with his daughter to the doctor (5 months after her original diagnosis) , all he could tell me about was the marvelous skiing magazines they had. My wife and I could only smile.

In those hours of waiting, I did discover the bulletin board which was full of community groups to help with coping.   I wandered around the Clinic’s Cancer Resource Center  which was helpful and I met a few men and befriended a few sharing stories about our wife’s situation then asking if we knew the score from last night’s basketball game.

What I realize was missing when I was working on my questions for Chad was a primer on what to do.  I had gathered so many articles and written so many notes and resources that I put together a small guide.  I think it would be a great set of readings for husbands, so I’ve packaged them together as a reading list for our surgeons and oncologists to give to their patients and spouses.  Even though my wife has passed her surgery stage of chemo I just feel like we owe so much to those that will follow behind us.

So what’s the status with my wife?  Well she still has scars and is dealing with letting them heal.  There is always some mention of them every night.  I keep reminding her that time heals all wounds.  I hate those words.  Who said that anyway?  She has four visits to the clinic this week.  The first was to check on her suture which opened up.  Tomorrow she gets one of her monthly suppression shot to reduce the amount of estrogen that feeds the type of cancer they removed from her, then she meets the following day with her oncologist to go over her clinical trial.  The trial is called S0307 and is a bisphosphonate trial primarily for pre-menopausal women.  Bisphosphonates are a group of drugs that have strong effects on the bones and have been shown to strengthen the bones in many patients who take them. This study will compare three study drugs, ibandronate, clodronate, and zoledronic acid in breast cancer.   My wife is taking clodronate.  The study will take place for 3 years.  My wife will be taking Tamoxifen for 5 years.    She has seen some minimal side effects but we just say that it shows the treatment is doing something. I try not to make a too big deal about it as I want her to feel like it is a normal thing we are ready to deal with. 

I know this is a weird note to end this blog, but I had a great run tonight and at the end, my iPod had a congratulations message from Tiger Woods for running my fastest time yet.  This was a pleasant surprise and I can’t wait to run faster tomorrow.

Learning to Let Go – Life is a Highway

“Don’t worry, you just have to let go”

Every day we reach those milestones.  As parents we look for new ones every day. As caregivers we help people cross new paths.  Today was a simple one.  Just crossing the street. Yes, today our son crossed the street for the first time by himself.  As a parent I watched the whole thing and felt so proud.  Unfortunately my wife was not so happy.  I told her she was going to have to learn to let go and know that this was a great chance to learn especially under the watch of a parent.

Well this might seem trivial to some, but I think it is a learning experience for both me and my wife.  She has always been from a family that is very conservative and controlling.  It is a tendency she tries to avoid.  Although she admitted that what my son did was fine, she was still hyper-critical.  I reminded her of how her own parents invaded her life as she got into her 20s and how she hated it.  I told her she had better learn to let go before her children not tell her when they did something for fear of being nagged to death.  In  fact i reminded her that her our son is very similar to me and that I have been known to go my own way without telling my wife when I fear her overmanaging a situation.  I told her that I don’t want our children to be the same way.

I’ve been thinking about it and I myself have to learn to let go.  I have to stop treating my wife’s condition like she’s going to break.  Although I’m not blocking my wife from returning to normal.  I have been jumping to do things for her and need to let her get used to doing things on her own again.  I am preventing her healing process from accelerating.  Baby steps at first like crossing the street but I have to make sure she has that chance to spread her wings as wide as she feels comfortable.  I asked her if this was an issue and she said it wasn’t but understood how I was feeling and told me that she was okay and ready to get on with her recovery.

I GUESS LIFE GOES ON..at least for another couple weeks until her next surgery.  She did mention that she talked to another mom from the school who just found out that she has cancer too.  Turns out that she has the same surgeon that my wife and mother had.    Pretty small world and quite amazing.

Well that’s me.  Signing off and letting go.

Breathing Deeply – A Loving Fight Against Breast Cancer

“I can’t tell you anything else to tell you how much I love you”

After the good news to end the week, it was easy to take a deep breath, smile and be thankful.  Have we dodged a bullet?  Maybe, but we will be dodging it for a while.  I think that is why cancer victims rally and stick together.  The treatment time is for many years.  I might be wrong, but I’ve not noticed this kind of camaraderie and community of survivors for heart attack survivors or by-pass surgery survivors.

The weekend was filled with our children’s sports events (soccer and golf) as well as concerts, the Blue Angels, Fleet Week, and professional sporting events.  Our 9-year old golf prodigy son lost against an 18 year old in a golf match and although he’s tough on himself and had very little chance to win anyway, he gained a great perspective.  As a dad all you try to do is encourage your child and make sure that kind of event doesn’t damage him.  Afterwards I patted him on the back and told him how proud I was and that he was very poised and gracious in defeat.  He laughed and said, “Dad, he was twice my age.  It won’t be the last time I lose a match.  There are more important things if you know what I mean.” Nothing can make a parent more proud than to try and teach one’s child a life lesson and to be reminded of one of the more important lessons in life.  You just don’t expect to get reminded by a 9 year old.

That afternoon at the soccer match I caught my wife sitting on a grassy hill (making sure she didn’t get accidentally hit my a soccer ball)  She had her eyes closed and I wanted to make sure she wasn’t suffering from more exhaustion.  She smiled and replied, “I’m okay.  The sun feels good.  It has never felt this good.  I just want to soak it all in”.  It isn’t like she’d been out since the surgery, but I knew what she was doing.  Something she hadn’t done in a while.  She was smelling the roses.  The good news had taken a huge weight off her shoulders (something she hadn’t been able to express).

She looked so peaceful all by herself with the Blue Angel pilots flying over head during Fleet Week.  I’m sure she didn’t even hear the planes roaring.  We’ve aged so much in the last few months.  Maybe we haven’t aged, but we sure haved lived a lot.

I watched the “Bucket List” again with her and she sobbed.  It meant more to watch it now.  Her perspective changed now that the chemo was not in her near future.  She could laugh now.  Her own bucket list would now be more thoughtful.  Her sobs were of relief.  Of sorrow. Of joy. I had been afraid to hold her til now.  I didn’t want to hurt her.

Today was her fourth meeting with the plastic surgeon.  We’re almost done and he said that a middle of November final surgery for the swap would be likely.  It will give her time to rest before Thanksgiving.  The recovery time might be about 2 weeks and only 5% of all patients need drains afterward.  Along with the hormone therapy we decide on, it will be the last mile of this journey.  It will be a long last mile but a journey worth traveling.

Turning the corner – One Month after Surgery

“The Longest Month Ever”

I gave my wife a kiss and told her it has been a crazy month since her surgery and she looked at me and said, “Its only been a month?  Wow, it is the longest month ever!”  I agree that it seems like we have come so far in a month.

Things continue to evolve emotionally and physically.  Yesterday while at the clinic she ran into an old co-worker.  They hugged and sobbed as soon as they saw each other there.  They hadn’t seen each other in 7 years, but they had a new bond and have already shared their stories with each other as well as numerous emails.  Having someone she personally knows going through it with her at the same age is a comforting thing for her.  It’s all the little things now.  Even yesterday when the Plastic Surgeon stood back, took a look and said, “I think it will all come out nice”, she took a mental note.  “Nice” isn’t always the most glamorous of words to describe something in a positive manner, but it worked for her.

Today was also a day we had been waiting for.  She finally heard an indication of what the test results said about her chance of recurrence for cancer.  This is an important outcome as it indicated the type of treatment plan you should follow with your oncologist.  When she called me at work, I picked up the phone with trepidation.  It was like the day she called to tell me she had cancer and I rushed home.   Those aren’t fun calls.  The day she called to tell me that my dad wasn’t breathing was just the same.  As I picked up the phone she said, “I hope you are free on Saturday as you and your son qualified for the Northern CA Family golf tourney in the 2nd flight!”  It was good news!  Not the news I was expecting but it was great and our son was going to be happy.  We talked for a few more minutes and then she continued, “Oh and the Dr. wrote me an email saying my scores came back low for recurrence”.

First I was  happy and could feel her smiling through the phone.  Then the psychologist in me said, “Wait, she gave you news about a golf tournament before she told you about her breast cancer”  I asked her if everything was alright and she said she felt like she was turning a corner and ready to get through this thing.

We watched a 45 minute video tonight to help us with her decisions she is going to have to make regarding her treatments.  Is it hormonal therapy, chemotherapy, both, or none? The clinic is pretty hands off and likes to let each person make their own decision so it is good to get educated. I told her that I was pro-choice on this and I didn’t want my own feeling to get in the way if she wanted to make the decision alone, but it is hard to look at your own health as one big statistic.  We haven’t made many decisions without each other for 22 years and she wasn’t about to start now.

So the oncology meeting is in a couple days.  We think they are going to tell her chemo is not really going to be beneficial and that Tamoxifen a hormonal therapy treatment with side effects will be her best plan, but who knows.  It is more of a sit and wait game again, but this time the wait is going to not be so stressful and the next month will go even faster.

Life is A Highway

“Today almost felt normal”

This morning raindrops turned to sunshine and we all got up and packed for a morning at the soccer field for our daughter.  Everything worked well as we got a good parking space in a difficult area, our daughter scored two goals, and we had a good time with the other parents.  Afterwards we came home, washed up and changed, and then went to the baptism of our friend’s adopted beautiful daughter.  Of course the usual questions came up about how we are doing and some of my best friends finally had the chance to see us for the first time in weeks.  It was good to just see them and say hello rather than talk to them on the phone.

Our life really had taken a detour.

We didn’t stay at the party long in order to conserve energy.  We both needed it as we fell asleep with afternoon naps before I had to gt up to get a long-needed haircut. 

While dinner seemed normal, it was anything but normal.  It was the first time she had made a meal in a month.  It cost her a lot of energy, but she did it (I did the dishes) and she was very happy to contribute to our daily life,  Tonight before going to bed with her normal dose of pain medication she said, “Today almost felt like a normal day”.  I couldn’t have agreed more.  I still feel like I’m tip-toeing and walking on eggshells to make sure she doesn’t get hurt or fall down, but we are slowly building back up to a comfort level.

We have three more consecutive Monday meetings with the plastic surgeon as well as our first meeting with the oncologist coming this week.  We are both a little nervous about that as we still haven’t heard how our oncotype scores have come out.

Right now the pain comes when she has been upright too long.  I don’t think this is going to change until she gets swapped out with implants.  It looks like we will be living with Vicodin and Adavan for a couple more months.  Hopefully we can both find more distractions to keep our minds busy over the next couple weeks.

If the boob fits, wear it? – Post Surgery Procedure

“You two are my favorite patients.”

Well our second visit to the PS was a little longer than expected.  More because he was busy.  By 9:30am he was running an hour and a half late. For the first time it seemed as we waited there that the patients all seemed older and more sick.  Many of them were asleep and to be awakened by the nurses as they were taken to the back.  My wife and I just held hands as we saw all these lonely people.  My wife later said that she was happy I decided to be with her as waiting in that room for 2 hours would have been real depressing although it is probably one of the more upbeat waiting rooms you could probably find in a cancer clinic with inspirational quotes from patients and pleasant music. 

Having visited the breast care clinic several times I have decided to contribute to their library of magazines.  Although I’m not sure many of the women want to read about golf, sports, photography or travel, I hope that the occasional husband or father or son who decides to go the extra step in this journey with their spouse, mom, or daughter can feel comfortable in doing so.

When we finally were called, Andrew, took my wife’s vitals.  He laughed and joked with us regarding my wife’s normally low blood pressure and how she wanted to be weighed on the “pound reducing” scale.  We actually notices one scale adds 5 pounds in the office.  Our respect for this office practice has grown so much.  While these physicians deal in a very “flashy” part of surgery, they have to deal with many real world situations that aren’t so glamorous.  Sitting in that room watching a 70 year old bald lady  walk in by herself in a very expensive suit, she still looked refined, but the sadness on her face was visible.  The chemo and the wear and tear of this journey had taken its toll.  When Andrew greeted her before us, he put on his best smile with a , “Nice to see you again, you’re looking strong”.  She finally emitted a smile. 

Our situation seems so minor compared to others and I’m sure emotionally seeing all of these sick people does affect the staff as well.  It did make us feel good though to hear Andrew say to us out of earshot of others, “You two are my favorite patients.”  Whether he meant it or not, we actually felt good that we were able to put a smile on his face.

As we waited another 20 minutes in the procedure room, the resident came in, then the fellow, then the nurse, then finally our PS.  My wife had forgotten her questions she had for him, but I was able to help her remember them all. It was good to ask.  They have so many patients it probably is hard to keep track.  We have to get another appointment so we will still need another 3 after the one we had.  That will make five visits post surgery.

He added another 100cc (total 350cc so far ) and gave my wife more recommendations for care and comfort.  My wife upped her dosage of her meds and felt much more comfortable to sleep and rest and was not awakened by the children this morning although she is still stiff.  The PS again was able to smile. He is such a serious guy, but even making him smile made us feel better.  He definitely had had a tough morning.  He had a better picture of where he was going with my wife and drew more pictures on her file.  He’s not a bad artist.  I think that is a good thing in his profession.  He told us enough to make us think we’ll have an exchange (barring chemo) sometime around mid-November. 

The real light hearted moment was when my wife asked him about implants – what kind, what size, etc?  He told her he won’t know until she’s in surgery again.  Depending upon the rib cage (the expander is currently sitting on the rib cage), any adjustments he decides to make depending upon what she tells him, etc. he will put what best works at that time.  When my wife asked him how he does that, he told her that they have this big storage room at UCSF just outside of the O.R. that has the largest consignment selection of implants in the US.  With the vision of this magical golden room full of implants my wife skeptically questioned, “Even more than they have in Beverly Hills?”  He proudly said that they have every imaginable size and selection readily available and approved in the US with more options than any other clinic in the country.

My wife’s eyes lit up, “So kind of like a shoe store, where you try on a few”.  She knows I hate shoe shopping.

He chuckled at the analogy, “Well we theoretically get one shot at this, so we try and get it right and there aren’t a selection of colors.  So if the shoe fits, that’s the one we’ll give you.  You might even have two different ones, but we try and match them.”  Great, we have an orthopedist and a comedian for a PS.

In the end the light conversation took my wife’s attention away from the growing discomfort that she was feeling in her chest.  She was too tight to drive home at that point, so it was fortunate I took her to this appointment. 

As a side note, my wife has had a cough almost since the day of her diagnosis.  The day the drains came out, it magically went away.  I always thought it might have been brought about by anxiety, but this almost proves it.  Interestingly enough, I think I developed a sympathetic cough.  My cough went away too.  I think last night was the best sleep we have had since this whole journey began.  Her chest still aches, but the exercises are helping and the higher dosage of pain killers is working.

On the way home, we decided that no matter if Andrew meant it or not, we would try to brighten the days of our medical team.  His comment of being his favorite patients meant a lot to us and reminded us that they are human beings too.  Each time we visit we would try and do something whether through nice conversation or a small gift of appreciation (more magazines for the waiting room, etc.) to let them know we care about them and appreciate all that they have done or are trying to do for us.  My wife reminded me that he referred to me as a patient as well and so did the PS.  Yep, we’re in this together.

Alright a Deep Breath and onto the Next Hurdle – A Loving Fight

“We’re in a good place but let’s keep on our toes”

And off she goes….I think my wife really is a new woman.  Although she has pain and deep discomfort from her expanders, her first full day without drains seemed to go without a hitch.  Although I still made breakfast and drove the kids to school, she had energy to go for a walk with our Principal’s wife, entertain my mother and sister who came by to check on her at lunch, and drive the mile to our kid’s school, read to our son’s 3rd grade class, and then make it home.  While still in discomfort, she said her energy level was more than back and all the exercise she had done to get in shape before surgery was a big help.

I sat at work worried and checking in on her.  I thought it was too much and stood at the ready in case she needed me.  I married a stubborn fighter.  She’s still soft inside, but she’ll fight when she needs to.  I reminded her that although she is feeling good today, the road is still long and we have some uphill painful battles yet to climb and we needed to keep on her toes.  That did it, I stepped over the line.  I needed to let her enjoy the moment.  Don’t rain on her parade, you fool!

The expanders though are our next hurdle and from what i’ve read the more they get filled the worse the pain  will get.  So although she says she doesn’t need me to take her there, I think I will just be there anyway to take her home just in case.  Funny we were so focused on the drains and then now our attention is on the expanders, the schedule for exchange and lastly the looming possibility of chemo.  It really is one step at a time.  While we are aware of each potential situation my word of advice is to cross the bridge when we get to it.  I think our physicians are amused by my wife’s lists.  My wife’s lists are famous in our house.  I don’t think there is a thing my wife won’t list.  I think our list of questions though will change from previous visits now that the drains are behind us.

Today she took her first shower and re-bandaged herself  Like many said it would, it felt good just tor un water all over her.  I think we’re going to have a water shortage here in California after that marathon shower.

One other note.  Sadly, someone out there on a message board thought it was “weird” that as a husband I was being an active information gatherer and was bothered by my being an active participant in my wife’s fight against cancer.  It really angered me and when I mentioned it to my wife, she gave me this big hug and assured me that many people don’t know what it means to have great support.  She’s right but I also think it is a sad state that someone would feel that there is some kind of perverted research that I am doing.  We’re talking about someone I love deeply and there is no end to what I would do to find out what I could do to help her.  I also feel saddened but understand that there are many out there who can’t feel open about what they share.

I also think she thinks it is weird mostly because I am a guy asking the questions as opposed to another woman . Many women ask questions but when a guy asks the questions she got scared.  This is sad because I think husbands need to be more active and help their wives through this.  The day will come when I will be in the hospital and I will need all of my wife’s support and I sure hope she can do for me what I did have been able to do for her.  People!  Cancer does not discriminate! Black, white, young, old, men, women, children….we need to fight the cancer, not the people!

Celebrate the Drains are Gone – 15 days post-Breast Cancer surgery

“Take Care of Your Body means Have a Nice Day”

And on the 15th day, we all sighed relief.  This morning we went into the hospital and had the drains removed.  They used Hurri-Caine spray to numb the area.  The nurse told my wife to breath deeply and as she breathed out the nurse pulled the drains.  First the right and then the troublesome left.  They were 6 inches in length each inside her and resembled long flat extension cords with little holes that the blood entered.  OIn the left side we saw that they were clogged and thus why we had leakage.

My wife said it truly is a relief.  She already seems like a new woman.  The laughing and giggling have started again.  She is still feeling small soreness and discomfort, but when asked to gauge her pain from a 1-10 (high), she said it was a 1.  This afternoon we took the first big step.  I had her drive to our kid’s school and back to pick up our son. She did it like an old lday with some soreness, but it made me feel good that she was able to accomplish this on her own. 

Ironically we ran into her surgeon at Starbucks on our way to the school.  She was surprised to see us out of context and glad to hear we were driving again.  “Just stay off the highways” she said.  Those in our neighborhood including the Principal’s wife were surprised and happy to see my wife behind the wheel again.  In fact, we are feeling guilty about all the meas we are still getting from our wonderful class parents.  I found that the other family which lost their mother to cancer is also getting meals prepared by the other families in our school.  How wonderfully blessed we are to be in such a wonderful community.

One of the funny things we all do is pick up the quirks of our parents and pass them on.  As my father was a physician and worked for the Department of Public Health in San Francisco during the height of the AIDs epidemic he used to always write notes and messages to us in our lunch boxes, birthday cards, etc.  They never said, “Have a Nice Day” or “We Love you”, or anything like that.  They always said, “Take Care of Your body”.  These notes continued onto college and even when ending a phone call. It was like the show “Hill St. Blues where the captain would say, “Hey…Let’s Be careful Out There”.

Dring my dad’s final months, we lived with him and I’m fortunate my children really got to know their grandfather.  One of the things they picked up was his silly phrase.  In honor of him we continue that phrase every morning.  The other day as I kissed my daughter and she ran off to class, she yelled “Take care of your body Daddy!”  A teacher heard the exchange and laughed.  I could only shrug my shoulders and smile.  The phrase was still embarrassing, yet so very important to our family.

As i mentioned, our life is one long race over hurdles and so linear that we just focus on the next task.  The next task is to deal with the expanders and the discomfort that will come as the expander pushes on the chest muscle over the next 2-3 weeks.

Tomorrow she beigns to spread her wings.