Tag Archives: wife

What’s Up? How’s Your Wife?

This is my most special place in all the world. Once a place touches you like this, the wind nevers blows so cold again. You feel for it, like it was your child.

– Moonlight Graham, Field of Dreams

Ah..what to write.  When I run each night, the mind swirls with this thick soup of thoughts.  Some people have writer’s block.  I have writer’s neurosis.  I wish you could see the list of half written blog entries that I have yet to complete.  You will, but hopefully they will still be relevant.  I guess tonight I will have to address some recent inquiries to my email……

Funny how I still occasionally get an email (this week I got two) which asked how my wife is and why I don’t write about cancer anymore in my blog.  The short answer is that this blog was never intended to be about my wife’s cancer.  It was just a continuation of my personal thoughts on life.  My public memoirs if you will.

The long answer is that I can say that I feel so lucky that my wife is doing great, gets monthly shots and takes daily pills to make sure the cancer does not come back.  We are just about at the one year mark of five years of Tamoxifin treatments (20% done is quite an achievement).  The monthly shots leave a nice black and blue mark on my wife’s abdomen, my wife’s surgical scars are starting to fade, and occasionally we talk about her side effects, but I take my cues from my wife for the most part.  She’s ready to move on.  That said, we don’t forget.  We don’t forget the fears, we don’t forget the worries, we don’t forget those nights without sleep, and we don’t forget the months of surgeries.  Reading some of the blogs and talking to those who have just been diagnosed or who have wives reminds us of where we were and how much our lives have changed.  

Breast cancer is now a large part of our lives so much so that we have to escape.  No breast cancer walks or runs for me.  My runs are my way of running in honor of my wife, mom, mom-in-law, cousins, aunts, and friends who have all been struck by breast cancer.  Every night when I run I am reminded of our fortunate results, my wife’s strength, and those others who we have met through our ordeal.  By the way, of all the above mentioned, only my mother was over 50 when first diagnosed.  Yes, this is in light of the new panel study which says that women should now wait til 50 before having mammograms.   It is really a shame that we are now trying to cut back on preventive medicine during a big time for research and discovery.  Now is not the time to cut back when we are making so much progress.

Yes, breast cancer as a topic is all around us now and we just can’t escape it so we relish those moments when it doesn’t remotely come close to infiltrating our conversations or thoughts.   It is like my friend who works with juvenile delinquents on a daily basis.  He has told me that because of his job he doesn’t want to have children of his own.  This week I met with a gentleman who has been waiting a month and his wife’s surgery is right after Thanksgiving.  I had met him a couple times, but this week he just broke down.  His fears and concerns finally overwhelmed his facade.  His worries about his wife, his kids, the mounting medical bills, and all the uncertainty surrounding the outcomes finally came to a head.  It just took me back a year and I relived it all in one hour.  That feeling of hopelessness hit me like a ton of bricks.  I broke down with this man I barely knew.  I couldn’t tell him things would be alright as I knew it wasn’t what I wanted to hear either.  I wanted a path.  I wanted a path out of the mess.  All I could tell him was to bury himself into caring for his wife.  Focus on the task at hand.

That night I ran a long run.  Couple that encounter with an incident earlier in the morning where I had a woman faint in the elevator bank in my office bulding.  It turns out she was having a heart attack.  All she kept saying was “my babies, my babies” . Her predicament had me distracted the rest of the day until I had my conversation with that breast cancer husband.  Both incidences had me reeling.  They reminded me of how fragile life is.  All I wanted that night was to be alone with my thoughts so I could just make sense of it all.

Well I hope that explains it all.  Thankful this Thanksgiving? Yep I sure will be.  Happy Thanksgiving everyone.

Beauty at a Dark Time

You make me want to lose myself in the mysterious distance between a man and a woman – U2 (A Man and a Woman)

Blossoms at Yerba Buena Gardens
Blossoms at Yerba Buena Gardens

The skies were dark and ominous this morning as I drove to work.  As it started to sprinkle I noticed the trees along the sidewalks had started to bloom.  The cherry blossoms along Japantown looked gorgeous and popped against the gray skies.  They had a strong glow about them.  Maybe they had been glowing for a couple weeks and I hadn’t noticed them until we got our first storm clouds of the year.  It is amazing how such beauty shines through even more at the darkest of times. 

These are curious times in the economy and everyone seems to be more on edge than normal.  You might say there are dark clouds everywhere, and not just in the sky.  I even overheard a homeless man here in San Francisco today tell a lady that he was better off than her because he didn’t have a mortgage or rent to pay.  So true that we should get heckled by homeless people now.  My own company has had layoffs and no matter who you are these days, people are worried abour their jobs.  I hear it, see it and feel it.  Even though I had an outstanding year there was still a nervousness going over my weekly call.  In reality, I had nothing to worry about, but in these times you never know (and one of my colleagues was actually let go today).

Despite all of this I still manage to slow down and smell the roses.  Or in this case I was looking for the analogy to my drive to work.  Was I capable of finding the cherry blossoms in my life against the dark sky?  It made me think about some of the stories I’ve read recently as well as my own.  The story of Chad Moutray and his daughter who now must move on with each other and their memories of their wife and mother.  They are each other’s cherry blossoms.  Last year despite all of the surgeries and doctor’s appointments, my wife’s beauty just showed brighter than ever to me.  I don’t think it has shone brighter and it has been there all the time.  We’ve known each otherfor over half our lives, but sometimes the dust gathers like it does on a lightbulb and you need to wipe it off and you suddenly realize that 60-watt light bulb is really 100 watts. I think in hard times like this the dust comes flying off and that dark room is radiated by the beauty that exists.

My wife had her oncology appointment and monthly shot today.  It was a little painful this time she relayed to me.  The O/S pellet they shoot in to here is something she’ll have to get used to and hopefully the side effects will lessen.  The wait is still what kills her as they were running 2 hours late.  Good thing I gave her a bunch of magazines for the waiting room.  There were no reports on her ability to metabolize Tamoxifen yet, but the side effects seem to indicate that she is okay with Tamoixfen and her cholesterol seems to be declining.  My wife loves to go into details running through her lab reports and every last minute of conversation she had with her nurses.  I laugh at her that it is more painful to me to hear her detailed reenactments of the day than to get a needle poked into me.  Listening to her get a shot is almost as bad for a guy like me who is squeamish about needles.

The day before, she had her meeting with her plastic surgeon to go over any adjustments she is going to need in March.  It was one of the appointments I missed because I was traveling.  Of course she forgot to mention the ONE thing I wanted her to speak about and we laughed.  Same old wife…she doesn’t listen to her husband.  Maybe that is what keeps her young!

In the end, the day came out beautiful.  I was able to get home and see my kids for the first time in a few days.  Additionally despite the very mundane conversation I had a chance to spend some time with my cherry blossom in my life.

My Wife and Her Breast Cancer Equal My Inspiration

My most brilliant achievement was my ability to be able to persuade my wife to marry me.
— Winston Churchill
The Santa Monica Boardwalk this evening
The Santa Monica Boardwalk this evening

I have always sought inspiration through true life stories.  I guess I never thought it would come from my life partner.

Those who know me and see me every day will tell you that over the past year I’ve lost over 10 pounds, ran over 1200 miles last year and can run a 5k faster than I did 20+ years ago when I was in highschool and college.  That might seem trivial to those who exercise daily,  but ever since I’ve graduated from high school I never had the drive for long periods of time to work out religiously and take care of myself.  Why now?  How do you find that kind of drive?

Last year when my wife was diagnosed with breast cancer I was down, but my wife told me to make sure I kept running.  The week after she was diagnosed I remember watching Forrest Gump with my children and there is this scene where his love, Jenny tells him,  “If you ever get in trouble, don’t try and be brave.  Just run.”  There is a scene where Forrest doesn’t know what to do and starts running.  I’ve been doing the same, although I ran with purpose.  My wife is my inspiration.

We all get inspired by bigger than life stories.  The pilot who saved 155 people by landing his plane in the Hudson, the new President who is breaking many barriers, the man who risked his life to save an unconscious mom and her two toddlers from a burning home, etc.  Sometimes we see movies like the first one I ever saw called “Brian’s Song” that had cancer involved and get inspired for the moment or for a period of time. 

 But when we live with someone who inspires you on a daily basis it changes you. My wife has to take pills every day, get shots once a month and every day think that there still might be a cancer in her body that might come back to haunt her.  Yet every day, she kisses me, makes breakfast, smiles and goes about her work.  All those pills, shots and everyday worries are not something she shares with me unless I ask.  I don’t ask because I want her to feel like life is as normal as can be as that is the way she wants to live it every once in a while.  She wants to put away that she is a Cancer Survivor.  She doesn’t want to be treated like she’s handicapped.  How can you not be inspired when the person who shares a bed with you every night does so with smile on her face.  She’s had two surgeries and is staring a third in the face, yet she is wanting to bring it on.  She’s had 14 hours of anaesthesia in less than 6 months.  I can’t imagine what it would be like to have those hours missing from my memory.

The other night she caught me staring at her sleeping before I went to bed.  I wanted to soak in her peacefulness, her beauty and my appreciation for her to still be with me and our children.  She asked me if anything was wrong and I just smiled and she gave me that knowing kiss that all wives will give when they know you appreciate them.  It’s the same kiss you get when you stand before all your friends and family the day you get married and state your love for each other.

Today I am off away on business again.  Away from my family.  It hurts to be away knowing my wife is still not 100% yet, but she’d not want it any other way.  Tonight I had a chance to visit the Santa Monica Boardwalk (see photo).  I told my business partner (no offense) that I wished it was my wife with me instead.  She deserved this sunset on this beautiful evening more than I did.

Mind Over Matter

Attitude is a little thing that makes a big difference.  ~Winston Churchill

As most runners know, there are times when you hit the proverbial “wall”.  I’ve found that it doesn’t matter whether you are running one fast mile or 5 long ones, the wall is always there. Your body aches and screams for you to stop but it is your mind that powers you on.

In a way I have hit that wall in caring for my wife.  That tough edge has been hard to keep up lately.  I’m not giving up on her though.  In fact her strength is coming back and I’ve been able to let my guard down a bit and that has allowed me to move on a little bit.  i think she is showing me that strength again to let me know that I can go on too.  She has now started going on and doing her own research online.  It has relieved me from having to read some of the more tragic or difficult stories online.  I used to go on Breastcancer.org to find answers but lately she has found a few good friends with the same physicians and they have encouraged her, helped her to mentally get stronger to face her fears, and she is spending more time talking to other women online.

She still is fragile though.  I just got back from being away four days in Las Vegas at a convention.  It was very difficult to be away from her and to leave her with no back-up.  Our nightly calls were more about wondering if she was okay.  It was also about telling my 9-year old son to watch out and take care of his mom.  I’m hoping that I don’t scare him, but I see great maturity in him.  I always have see it since he was little baby.  He just had this “old sage soul” look about him.  At the same time he still has the other issues that little boys have, not cleaning up, not lifting the toilet seat, and not slowing down around the house.  All in all he’s a good kid though and I trust him immensely.  My favorite moment (you’ll see the relevance below) is when he was 7 and as an advanced reader had picked up an encyclopedia to look up the word embryo, a word he had heard on Animal Planet.  The next thing you know he is telling me that apes and humans are very simliar and that men have sperm and women have eggs, but they don’t lay them like chickens.  My daughter (5 at the time) stood behind her brother with her arms crossed and looking at me as if to say, “Hey, what’s the big idea?”  well let’s just say I don’t think I’ll ever have to have the bird and the bees talk with my chilldren ever.  Hopefully that is a fatherly chore that I won’t miss.

It has been 5 weeks now since my wife’s latest surgery and I have had a hard time honestly looking at her scars and even at her chest.  Tonight she wanted to start documenting and had me take a few photos of her reconstruction.  I was a little nervous.  It was the first chance for me to take a look.  It is hard for me to look at my beautiful wife with her scars and say that they look great only because I know she is able to sense any hesitation or trepidation in my voice.  It is still early and even she knows they aren’t quite ready to be looked at.  She is going to need to get some revisions as the original scars haven’t healed straight.  She will have a follow up appointment on March 23.  It should be an hour procedure. 

The hard part was that today the doctor called to make the appointment and our 9 year old son listened in on the other line when my wife was talking.  He later told my wife that he had listened.  He is really worried that his mother is going to have a third surgery and asked if she was going to be okay.  Our daughter caught on and told us that she thought we got rid of “mommy’s lump”.  We told them that just like we need to go to the doctor every year that mommy needs to go every month and that she was lucky that her doctors could spend so much time with her.  Listening to her talk to the children I realized she is getting stronger.  She doesn’t want them to worry.  She is even telling me she will just need local anaesthesia for the final surgery.  I would prefer general if it were me but she is game.  She told me she knows she can “handle it” .  I told her that I didn’t think it would be a good idea but she’s the strong one when it comes to blood and guts and told me I was getting soft and where was the guy who stripped her drains 4 months ago?  We had a good chuckle.

All this means to me is that my wife is almost fully back and I couldn’t be happier.  She’s taught me a lot about myself and our relationship over the past several months.  It has been painful and although there are times we wanted to give up, but somehow we’ve built the strength from each other and kept moving and pushed through that wall.  The aches and pains are still there but the goal line or finish line is still out there on the horizon. 

Life goes on and we’re traveling down the road together.  We’re helping each other out and making sure the other doesn’t give up and that we don’t give up on each other.

Listening to win – A Loving Fight

“The ear of the leader must ring with the voices of the people.” — Woodrow Wilson

I was recently asked if some of my earlier posts could be used on the site www.Fightpink.org.  Quite frankly I was surprised as I never intended for these postings to be used elsewhere.  The intent of this blog becomes clearer every day as it is more for me than anyone else.  My memory isn’t what it used to be, but more importantly I’ve always documented my thoughts and someday I’d like my children to know why I did what I did or know what I thought about particular incidents in our lives.

Reading those old posts was haunting.  I guess I’d forgotten already how I was feeling at that time.  That is pretty funny given that many say I have a photographic memory.  I laugh at that as I pretty much find myself to be so scattered in life that I just document my life meticulously so I won’t forget.  I listen and listen hard.  I listen to learn and listen  to comfort others.  I sometimes am asked why I don’t speak up on some conversations.  I guess that I’ve always believed that sometimes silence is golden.  And sometimes silence, pictures and images speak a thousand words.

Right now it’s all about listening to my wife’s questions.  I can see and hear her concerns about her surgical scars.  She doesn’t complain but tells me about the research and conversations she is having.  The skin-sparing matectomy has several kinds of scars, but the ones my wife had (over 18 only please) can be depicted through the attached photo links:

Areolar: http://www.justbreastimplants.com/gallery/incision_areola.htm

Crease: http://www.justbreastimplants.com/gallery/incision_crease.htm

The areolar was used for the original expander, but the crease was used to help reconfigure my wife so as to allow my wife to have a bit of a reduction.  Right now the ster-strips still cover the scars.  The black and blue are gone and now the healing once again becomes both physical and emotional.  While many would think this sounds more physical, I’m listening to my wife and her voice.  She wants to look normal.  Normal for me and for her.Pictures speak a thousand words for her.  Seeing things look almost normal will have an emotional healing that things are still the same for her.  Hearing her husband honestly telling her that he thinks she looks great is one thing, but she is going to have to believe it herself.  Any married couple knows that.

Tomorrow I think I’ll talk more about my own expectations and observations for 2009.